Amy Shives is one of the founding members of Dementia Alliance International and she recently spoke at the Alzheimer’s Association 2015 Advocacy Forum in Washington DC last month. Dementia Alliance International is a non-profit organization of people who have been diagnosed with dementia from the USA, Canada, Australia, United Kingdom, Germany and other countries. Their goal is to represent, support and educate others living with the disease and change the language and perception of dementia to that of what a person CAN do, not what they CAN’T. Amy’s story is one of courage and hope in fighting the stigma of younger on-set Alzheimer’s and dementia in general. She talks about her own experience with her mother’s diagnosis of Alzheimer’s and then her own diagnosis at age 50. Among other things she says that those who have dementia don’t wish to be know as “suffering” from Alzheimer’s disease but as “people who have Alzheimer’s”. They are people first and have many capabilities despite their diagnosis. Watch below to see Amy’s amazing speech.
Continue reading “We Are People Who Have Alzheimer’s. We Are Not Alzheimer’s.” »