Dementia

According to The Association for Frontotemporal Degeneration (AFTD), Frontotemporal Dementia (FTD) refers to a progressive disease process which causes a group of brain disorders. These disorders result in cell damage to specific areas of the brain – the frontal lobes and/or the temporal lobes.  The atrophy of these nerve cells interferes with brain activity and causes a loss of function in these regions of the brain.

Frontotemporal Dementia is different from other types of dementia in two important ways:

  • The trademark of FTD is a gradual, progressive decline in behavior and language with memory usually remaining intact. As FTD progresses it gets more difficult for the person to plan or organize activities, interact with others appropriately, and care for themselves.
  • In the majority of cases, FTD occurs earlier in life in people between the ages of 45 to 65, although it has been seen in people as young as 21 and as old as 80.

Frontotemporal Dementia is often misdiagnosed as a psychiatric problem or a movement disorder, such as Parkinson’s Disease. This is because certain symptoms of FTD mimic other diseases and in other cases, individuals are considered “too young” to have dementia.  According to AFTD, Alzheimer’s Disease is another possible misdiagnosis; however, the largest difference is that FTD affects language and behavior, while AD affects memory. 

Brain image of FTD vs Alz: image from medschool.ucsf.edu

Image from medschool.ucsf.edu

FTD makes up about 10%-20% of all dementia cases and the course of FTD ranges from 2 to over 20 years. The average length is about 8 years from the beginning of symptoms. It affects both men and women and, in some cases, can be inherited.

According to HealthLine.com, symptoms of FTD differ depending on the area of the brain affected, but most symptoms fall under behavior or language.

Common Frontotemporal Dementia behavioral issues include:

  • Loss of empathy
  • Inappropriate actions
  • Compulsive behavior
  • Lack of inhibition or restraint
  • Neglect of personal hygiene and care

Common Frontotemporal Dementia language-related symptoms include:

  • Difficulty speaking or understanding words
  • Problems recalling language
  • Loss of reading and writing skills
  • Difficulty with social interactions

Cognitive and Emotional symptoms of FTD include:

  • Difficulty planning, organizing, and/or executing activities
  • Becoming less involved in daily routines
  • Abrupt mood changes
  • Apathy
  • Emotional withdrawal
  • Becoming distracted
  • Reduced initiative

FTD Movement symptoms include:

  • A difference in gait, such as walking with a shuffle
  • Tremors
  • Muscle weakness, or cramps
  • Clumsiness
  • Apraxia (Loss of ability to make motions which are usually common and easy, such as using utensils)

Proper diagnosis is crucial because some medications used to treat other types of dementia may be harmful to a person with FTD. Unfortunately,  AFTD reports no cures at this time. However, research is ongoing and rapidly increasing, and new drugs are beginning to be clinically tested.  

Most importantly, remember that those dealing with any form of dementia are not doing these things on purpose. When providing care, caregivers sometimes trigger behaviors without realizing it. By understanding more about the many different types of dementia, caregivers can begin to improve quality and enjoyment of life at whatever stage of dementia a person happens to be in.

Visit The Association for FrontoTemporal Degeneration

AFTD helpline: 866-507-7222


Learn about different types of dementia in our other blog posts!

Understanding Dementia

Understanding Alzheimer’s Disease

What is Vascular Dementia?

What is Lewy Body Dementia?

______________________________________________________________________________________________________________________________________

Aspen Senior Care provides in-home care for seniors with all types of health challenges, including all forms of dementia.

Aspen Senior Day Center in Provo provides adult day care services (fun activities and personal care) for seniors with all types of dementia.

Contact Karen Rodgers, Family Caregiver Coach, for a free assessment to help you navigate the challenges of caregiving. You can reach her at 801-224-5910.

Visit aspenseniorcare.com or call our office at 801-224-5910 for more information.

It is helpful to begin by answering the question, what are Lewy bodies? Named after the scientist who discovered them, Lewy bodies are tiny abnormal protein deposits (also known as alpha-synuclein) found in the brain.

Lewy Body Dementia (LBD) is caused when Lewy bodies build up in the brain’s nerve cells. Eventually, Lewy bodies overtake the cells and cause them to die. They are so small they can only be seen with a microscope and can affect any part of the brain. According to The Lewy Body Dementia Association, these Lewy bodies affect individual’s behavior, sleep, body movements, and the ability to reason and make decisions. 

Image of a Lewy body in a neuron of the brain.

Unfortunately, LBD is believed to be underdiagnosed. This is due to overlapping symptoms found in Alzheimer’s as well as Parkinson’s Disease. 

Although the symptoms of LBD are similar to these diseases, LBD affects the brain differently. Because of this, getting an accurate diagnosis is important in managing this type of dementia. Some medications used to treat Alzheimer’s and other types of dementia may actually cause dangerous and permanent side effects in people with LBD.

Three Presentations of Lewy body dementia

Lewy body dementia is a term used to describe three related clinical diagnoses:

  • There are some individuals who present with neuropsychiatric symptoms (hallucinations, issues with difficult mental activities, and behavioral problems) which lead to an initial LBD diagnosis.
  • Some people may be initially diagnosed with Parkinson’s disease after experiencing movement disorders. Later they develop dementia and are diagnosed with Parkinson’s disease dementia (PDD).
  • Others will first experience memory and cognition disorders which can be mistaken as Alzheimer’s Disease. Over time these people develop more distinctive features of dementia with Lewy bodies (DLB), resulting in an accurate diagnosis of Lewy body dementia.  

According to The LBDA, “A rather arbitrary time cutoff was established to differentiate between DLB and PDD.  People whose dementia occurs before or within 1 year of Parkinson’s symptoms are diagnosed with DLB.  People who have an existing diagnosis of Parkinson’s for more than a year and later develop dementia are diagnosed with PDD.

Symptoms of Lewy Body Dementia include:

  • Detailed visual hallucinations
  • Individuals may experience depression, anxiety, agitation or other behavioral or mood symptoms
  • Difficulty with movements such as walking, tremors, or stiffness
  • Difficulty sleeping, interruptions to sleep, or vivid dreams
  • Losing the ability to manage body functions such as bladder or bowel control, blood pressure, or body temperature

Because Lewy bodies can affect many different parts of the brain, there are multiple symptoms that can occur. As more and more nerve cells deteriorate, symptoms can increase and become worse.

Treatments

At this time there is not a cure for Lewy body dementia and the course of treatment will vary from person to person. Because each person experiences different symptoms, and each symptom requires a different form of treatment, it is important to seek medical advice from a doctor to determine the best plan of care.

How you can help your loved one 

A woman with her arm around a friend

Learn what you can do to support your loved one.

The Alzheimer’s Society recommends developing tactics which may assist individuals who are experiencing symptoms. Making lists, writing events on the calendar, or setting reminder alarms can be good techniques to use for memory loss. Walks or other active daytime activities may help with sleep disturbances. Seeking professionals such as neurologists, or physical therapists may help with movement symptoms.

It is also recommended to reassure those experiencing hallucinations that you are there to help them and not that what they are experiencing is not real.

Most importantly, remember that those dealing with any form of dementia are not doing these things on purpose. When providing care, caregivers sometimes trigger behaviors without realizing it. By understanding more about the many different types of dementia, caregivers can begin to improve quality and enjoyment of life at whatever stage of dementia a person happens to be in.

______________________________________________________________________________________________________________________________________

Learn about different types of dementia in our other blog posts!

Understanding Dementia

Understanding Alzheimer’s Disease

What is Vascular Dementia?

What is Frontotemporal Dementia?

______________________________________________________________________________________________________________________________________

Aspen Senior Care helps seniors with all types of dementia. We provide professional caregivers to assist them in their homes and to give the family caregivers the break they need.

Aspen Senior Day Center in Provo provides adult day care services (fun activities and personal care) for seniors with all types of dementia.

Contact Karen Rodgers, Family Caregiver Coach, for a free assessment to help you navigate the challenges of caregiving. You can reach her at 801-224-5910.

When a person is diagnosed with dementia, it affects the whole family.  Most families don’t know where to begin when it comes to finding help and resources.  Taking a team approach to dementia care is the best way to support families as they support their loved ones.

What is a team approach?

When we think about a team, we think about individuals working together towards the same goal. For families caring for a loved one with dementia, the goal is to provide good care as the disease progresses and also to support each other. Life doesn’t stand still for family members caring for their loved one. Families need to be able to continue with their hopes and dreams, even if some of those hopes and dreams have changed due to their loved one’s illness.We love working with our clients! It takes a team approach!

This is why a team approach to dementia care is so important.  There are agencies here in Utah County that share the same caregiving and quality-of-life goals for people with dementia that caregiving families have.  They offer dementia care education, respite care, and other kinds of support to these families.

Knowing where to find these resources can sometimes be a challenge, especially for families who have just received a diagnosis of dementia. This is where a caregiver coach can be of help.

A Caregiver Coach

Teams usually have a coach – someone who helps the team members by providing education, guidance, and support to help the team succeed. A Caregiver Coach helps families caring for loved ones with dementia. There are many resources available for such families –  the challenge is knowing where to find this information and what applies to their situation.

Each family caring for a loved one with dementia has unique challenges. A caregiver coach meets one on one with family caregivers and helps them find the right resources for them.

A family caregiver coach can:

  • educate families about the type of dementia their loved one has
  • offer ideas for creating a safe home environment
  • be a listening ear for caregiver challenges and frustrations
  • help problem solve challenging behaviors and situations
  • find support groups the caregiver might feel comfortable attending
  • help families access respite, in-home care, and adult day programs in the area.

    Caregiving takes a team

Aspen is here to help

The caregiving journey doesn’t have to be made alone. There are people who want to help and who know from experience the challenges families face. Aspen Senior Care takes a team approach to dementia care and wants to help you meet your caregiving goals. This is why we have a Caregiver Coach to help families meet the challenges of caregiving.  Meeting with our caregiver coach is a complimentary service we offer. To find out more about this service please call 801-224-5910. We are here to help!

 

____________________________________________________________________________________________________________________________

Learn about different types of dementia in our other blog posts!

Understanding Dementia

Understanding Alzheimer’s Disease

What is Vascular Dementia?

What is Lewy Body Dementia?

What is Frontotemporal Dementia?

 

  1. We specialize in helping seniors live at home longer.

Sometimes daily tasks become difficult for your loved one to accomplish and a loving and helping hand is all they need to maintain a good quality of life at home. Aspen Senior Care’s trusted professional caregivers offer non-medical services to help your loved one live comfortably in their own home for as long as they desire.

Here are the words of two of our clients:

  • My mother’s caregiver helps her with bathing, feeding her breakfast, getting her dressed, making her bed, and doing her laundry. The caregiver also takes out the garbage and makes sure the kitchen is cleaned up. She does everything.

Lynn B.

  • My caregiver cares about me and takes care of me, then takes care of things around the house.

Lois C.

Our specific services include:

Aspen Caregivers – We love what we do!

  • Caring companionship
  • Shower assistance
  • Hygiene care
  • Homemaking
  • Meal planning and preparation
  • Errands and Transportation
  • Light housekeeping
  • Medication reminders
  • Alzheimer’s and dementia care
  • Respite and Hospice care
  • Delivering peace of mind
  • And much more

Our sister company offers adult day care services and activities for seniors needing memory care. Just visit their website at Aspen Senior Day Center.

  1. We give family caregivers the break they need!

Family caregivers work tirelessly each and every day to give the best care possible to their loved one. We at Aspen Senior Care know that while being a caregiver is one of the most rewarding callings, it can also be tiring and difficult at times.  This is where our professional caregivers step in and provide respite care. Every hard-working caregiver deserves a break to accomplish their daily tasks, run errands, visit family and friends, or take a nap! We’re not taking over, we’re giving family caregivers a chance to take a much-needed break while their loved one follows their daily routine with our trusted professional caregivers.

  • I can’t be there in the afternoon so the services allow someone to be with my mom when I can’t be. 

Tricia L.

  • Having the services helps so that someone is with my mom while I’m at work, and the caregivers show compassion by the way that they talk to my mother. It shows a lot.

Kevin B.

  1. We take great care of our clients and our caregivers.

Gary Staples, Owner and Administrator, founded Aspen Senior Care over 13 years ago because he believed that seniors need the finest care during their final years of life. Our team here at Aspen Senior Care values that belief and works every day to ensure that belief stays true by having a great love and respect for the seniors we care for.  We value our clients and our caregivers and want to ensure that not only are their needs met to their full expectation, but that they feel heard, loved, and appreciated each and every day. 

  • Aspen Senior Care is right on the mark. They check back and their people are professional and kind. I think they’re perfect.

Josephine C.

  • The services from Aspen Senior Care made me feel like my father was being cared for by people that truly care about him.

Ron S.

  1. We have a reputation for delivering on our promises. 

Aspen Senior Care values transparency and ensuring we are living up to our promises! We love what we do, and we hire only those we trust to care for those you love! We at Aspen Senior Care have a promise to each and every client that we work with to always:

  • Be caregivers you can trust in every situation   
  • Give you the type of service that will make you want more
  • Be professional in all that we do and treat you with love and respect
  • Follow the care plan on every shift and document what is accomplished

You are very important to us and we always consider you our highest priority. So, each of us has made the above promise, and we have signed a poster-size version of it and displayed it in our offices as a reminder of our commitment to you. If for any reason you believe that we are not keeping our promise, please let us know immediately. After all, a promise is a promise.

  1. We provide award-winning home care with loving, professional caregivers you can trust!

Aspen Senior Care is an award-winning option for those searching for caregivers devoted to providing the highest level of care, respect, love, and professionalism. Every year for the past eight years, Aspen Senior Care has received Best of Home Care – Provider of Choice from Home Care PulseⓇ, an independent third party company which interviews our clients and their family members regarding their experience with our company. This award means that we have received the highest customer satisfaction scores from our clients compared to other in-home care providers.  

Aspen Senior Care was also voted #1 in the ‘Best of Homecare’ category for Daily Herald‘s – The Best of Utah Valley 2017 Readers Choice Awards. This will make 5 years in a row!

 

 

For more information, call our office at 801-224-5910

What is it?

Alzheimer’s Disease is the most common form of dementia and makes up about 60% to 80% of dementia cases.  However, many researchers believe this number is too high and that other forms of dementia may be under diagnosed. On average, a person diagnosed with Alzheimer’s will live with the disease for 4-8 years depending on the person’s health and age.  The majority of cases are people aged 65 and older.

In some cases, individuals with this disease aren’t diagnosed until they have had the disease for a few years because the symptoms come on gradually and can be confused with normal aging.

A healthy brain versus a brain affected by Alzheimer’s Disease.

What causes Alzheimer’s Disease?

Although there are ongoing studies, Alzheimer’s Disease is believed to be caused by protein build-up in the brain. These abnormal protein particles are called tangles and plaques and as these tangles and plaques start to attach to nerve cells in the brain, they block communication between the cells and also keep the cells from getting nutrients and oxygen to survive. When a nerve cell dies, that part of the brain shrinks causing the disease to gradually worsen over time. Subsequently, this begins to affect memory, thinking, and behavior as the brain’s “file system” is progressively removed.

Symptoms include:

  • Forgetting how to use common, everyday items
  • Forgetting how to do common activities, such as cooking and driving
  • Misplacing things and not being able to problem solve to find them
  • Becoming fearful or jealous of people
  • Unable to find the right words to speak or write
  • Repeating the same question over and over
  • Poor judgment about appropriate behavior
  • Confusion about time and place
  • Mood and personality changes
We Are People Who Have Alzheimer’s. We Are Not Alzheimer’s.

We Are People Who Have Alzheimer’s. We Are Not Alzheimer’s.

According to the Alzheimer’s Association, there are different stages of the disease which will progressively worsen over time, although the disease will affect each individual differently. Initially, early-stage Alzheimer’s Disease will result in mild memory loss but as it progresses towards late-stage, the disease removes functionality and the ability to make conversation or respond to what is happening around one’s environment.  

Unfortunately, medication does not slow down the progression of Alzheimer’s Disease.  However, there are both drug and non-drug treatments which can help neurons in the brain to fire, aiding in cognitive and behavioral symptoms. 

 

To learn more about Alzheimer’s Disease and other Dementia related topics, visit our blog or the following websites:

Alzheimer’s Association  (24/7 Helpline: 1-800-272-3900 and Find Your Local Chapter)

NIH –  National Institute on Aging

Mayo Clinic

______________________________________________________________________________________________________________________________________

Learn about different types of dementia in our other blog posts!

Understanding Dementia

What is Vascular Dementia?

What is Lewy Body Dementia?

What is Frontotemporal Dementia?

______________________________________________________________________________________________________________________________________

At Aspen Senior Day Center in Provo, we provide adult day care services (fun activities and personal care) for seniors with all types of dementia.

Aspen Senior Care provides in-home care for seniors with all types of health challenges, including all forms of dementia.

Contact Karen Rodgers, Family Caregiver Coach, for a free assessment to help you navigate the challenges of caregiving. You can reach her at 801-224-5910.

Visit aspenseniorcare.com or call our office at 801-224-5910 for more information.

 

 

What is Dementia?

Dementia is not a specific disease, it is the term used to describe several different diseases of the brain which affect:

  • MemoryAspen Senior Care. We love our clients!
  • Language skills
  • Visual Perception (being able to see and understand what is being seen)
  • Capability to focus and pay attention
  • Capability to reason and make decisions

About Dementia

It is important to understand that dementia is more than just memory loss, it is brain failure. Dementia is caused by damage to brain cells thru a head injury, blockage to the blood flow, or certain types of proteins that build up and interfere with brain function.

Different parts of the brain are responsible for making different parts of the body work.  Therefore, the type of dementia a person has is determined by how and where the cell damage occurs in the brain. According to the Alzheimer’s Association, when the cells in the brain are damaged it prevents the brain from communicating efficiently. This can affect behavior, thinking, and feelings.

There are many different types of dementia. Dementia is an “umbrella” term used to cover many causes of brain failure.

The four most common types of dementia are:  Dementia is the term used to describe several different diseases of the brain which affect memory, language, and more.

  • Alzheimer’s Disease
  • Vascular Dementia
  • Dementia with Lewy Bodies
  • Frontotemporal Dementia (FTD)

It is not uncommon for a person to have two types of dementia combined, and this is called Mixed Dementia.  However, different brain imaging tools (PET Scan, MRI) can help determine which type of dementia one is dealing with. These scans can help solidify a diagnosis and are less invasive and more definitive.

Caregiver and client at an Aspen Senior Care event.

How can you support someone with dementia?

It is important for caregivers to have a general understanding of how dementia affects seniors and their families. While all dementia has some common characteristics, it’s helpful for caregivers to know the distinguishing characteristics of each type of dementia.

The more a caregiver knows about the type of dementia a senior has (if a diagnosis has been given) the more they will recognize and understand behaviors and learn how to use the positive approach when working with them.  However, it is important to remember that each person is unique and the course their disease follows will be unique.

Most importantly, remember that those dealing with dementia are not doing these things on purpose. When providing care, caregivers sometimes trigger behaviors without realizing it.

When they understand more about the many different types of dementia, caregivers will begin to improve quality and enjoyment of life at whatever stage of dementia a senior happens to be in.


Learn about different types of dementia in our other blog posts!

Understanding Alzheimer’s Disease

What is Vascular Dementia?

What is Lewy Body Dementia?

What is Frontotemporal Dementia?

______________________________________________________________________________________________________________________________________

Aspen Senior Care provides in-home care for seniors with all types of health challenges, including all forms of dementia.

Aspen Senior Day Center in Provo provides adult day care services (fun activities and personal care) for seniors with all types of dementia.

Contact Karen Rodgers, Family Caregiver Coach, for a free assessment to help you navigate the challenges of caregiving. You can reach her at 801-224-5910.

Visit aspenseniorcare.com or call our office at 801-224-5910 for more information.

Aspen Senior Care is excited to share some great on-line dementia care help for family caregivers!

With all of the information about dementia care out there, it can be an overwhelming task to sort through and figure out just what information is best and how it applies to your situation.

At Aspen, we understand the difficulties family members face while caring for loved ones with dementia and our goal is to be a source of support, education, and information to which family members may turn as they cope with the daily challenges of caregiving.

Learning from the best and looking for the positive

Because there is so much material on dementia care out there, we have looked long and hard to find up-to-date, quality information that is both useful and practical for families to implement, and we believe we have found this resource in Teepa Snow, a dementia care education specialist with over 30 years of experience in this field.

 

Teepa Snow,
Dementia Care Specialist

She has developed The Positive Approach to Care training series to help professional and family caregivers better understand the physical changes that happen with dementia, and develop skills to understand and care for people with dementia

Our professional caregivers use Teepa Snow’s Positive Approach to Care training series to better understand memory loss and how using this approach improves the quality of life for both the caregiver and the person receiving care.

The positive approach focuses on what individuals with dementia CAN do at each stage of the disease instead of focusing on the skills they have lost.

 

Online Caregiving Tips

With this in mind, we have put together a list of short video clips taken from Teepa Snow’s training DVDs. More can be found at Teepa’s YouTube channel and The Pines of Sarasota YouTube channel.

These are just a few of the on-line dementia care help available for family caregivers.  Aspen Senior Care has some of the full-length DVDs from which the above clips are taken. Family caregivers are welcome to come and watch the entire DVD if they would like. Just give us a call at 801-224-5910 to check on availability and schedule a time to come in.

Aspen Senior Care is here to help families meet the caregiving challenges they face. We want families to feel they aren’t alone, that there is hope and help available. Please visit our website at aspenseniorcare.com and call us at 801-224-5910 for more information. We’re here to help.